Organizational and individual barriers and facilitators to the integration of pediatric palliative care for children: A grounded theory study

2021 May 7
05/07/2021
By Anat Laronne , Leeat Granek , Lori Wiener , Paula Feder-Bubis , Hana Golan

Background: Pediatric palliative care has established benefits for children with cancer and their families. Overcoming organizational and healthcare provider barriers have been demonstrated as central for the provision of palliative care in pediatric oncology. A deeper understanding is needed of the influence of these barriers and the interactions between them, specifically in primary palliative care in hospital settings.

Aim: To identify the organizational and healthcare provider barriers to the provision of primary pediatric palliative care.

Design: This study utilized the grounded theory method. Semi-structured interviews were conducted and analyzed line by line, using NVivo software.

Setting/participants: Forty-six pediatric oncologists, nurses, psychosocial team members, and other healthcare providers from six academic hospital centers participated in the research.

Results: Organizational and healthcare provider factors were identified, each of which acted as both a barrier and facilitator to the provision of pediatric palliative care. Organizational barriers included lack of resources and management. Facilitators included external resources, resource management, and a palliative care center within the hospital. Individual barriers included attitudes toward palliative care among pediatric oncologists, pediatric oncologists’ personalities, and the emotional burden of providing palliative care. Facilitators include dedication and commitment, initiative, and sense of meaning. Provider facilitators for palliative care had a buffering effect on organizational barriers.

Conclusion: Organizational and healthcare provider factors influence the quality and quantity of palliative care given to children and their families. This finding has implications on interventions structured to promote primary palliative care for children, especially in healthcare systems and situations where resources are limited.

Keywords: Pediatrics; cancer; grounded theory; palliative care.

More publications on the subject

Feasibility study of a systematic approach for discontinuation of multiple medications in older adults: addressing polypharmacy
Background: Polypharmacy and inappropriate medication use is a problem in elderly patients, who are more likely to experience adverse effects from multiple treatments and less
The oncologist’s role in delivering palliative care
Abstract Given that such a substantial proportion of oncology patients have advanced and/or incurable cancer oncologists invariably face enormous challenges in maintaining or improving
The cultural context of patient’s autonomy and doctor’s duty: passive euthanasia and advance directives in Germany and Israel
01/11/2010
Abstract The moral discourse surrounding end-of-life (EoL) decisions is highly complex, and a comparison of Germany and Israel can highlight the impact of cultural
Selected issues in palliative care among East Jerusalem Arab residents
01/01/2010
Abstract Understanding of cultural context is important when working with Palestinian patients, particularly in Israeli hospitals. Cultural competence includes individual assessment of communication needs
End-of-life needs as perceived by terminally ill older adult patients, family and staff
01/09/2010
Abstract Purpose of the study: A comparison of inpatient end-of-life needs as perceived by terminally ill older adult patients, family, physicians and nurses, is lacking.
The cultural context of end-of-life ethics: a comparison of Germany and Israel
01/07/2010
No abstract available